The Beach Center has focused on research for and about families who include individuals with disabilities for over 25 years. Individuals with disabilities of all ages are part of a family. Families may be a family of origin, an adopted family, or a family comprising people who are not biologically related. Former Beach Center Co-Directors Ann and Rud Turnbull and their colleague, Jean Ann Summers, have presented information and research for and about families worldwide. The Beach Center research team served as the Rehabilitation Research and Training Center on Families and Disability for over 20 years. The focus was on development of measures such as Family Quality of Life and measurement of Family-Professional Partnerships, evaluating family support policies such as person-directed funding and choice and control, investigating the impacts of family support programs such as parent-to-parent and family-centered service coordination models, and developing training and support for practitioners serving families and their children with disabilities.
Family Research Toolkit
What is the Toolkit?
Our Beach Center Family Research Toolkit contains scales, surveys, checklists, and conversation guides we have developed in the course of our research.
The Beach Center Family Quality of Life Scale is available free of charge. Permission is granted for use in any educational or research purpose, provided appropriate reference is given in any reports or publications reporting results of studies using the Scale. Recommended citations are located on the cover sheet of the Scale.
Family Quality of Life
Beach Center Family Quality of Life Scale
Beach Center Family Quality of Life Scale (Spanish version)
Beach Center Family Quality of Life Scoring Guide
Beach Center Family Quality of Life Conversation Guide
Beach Center Family-Professional Partnership Scale
Beach Center Partnership Scoring Guide
Beach Center Family and Professional Self-Assessment Guide
Beach Center Administrative Structures Surveys
Beach Center Family Community Integration Survey
Beach Center Psychological Empowerment Scale (PES)